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FFL ORLANDO EXCURSION GUIDE V.2
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Hello Fiffles! Here is your Excursion Guide v.2. The Friends for Life Orlando Safari is less than 30 days away! Are you ready? Below you will find info to make the most out of your experience with us.
Most importantly, Disney's Coronado Springs Resort room block closes THIS WEEKEND. You can book your room here today, or by calling 407-939-4686.
Do you have questions about the conference? Not sure how it works? Visit our Friends for Life Frequently Asked Questions page for more information, and consider joining and consulting the official Friends for Life Orlando Facebook Group. In case you missed our First-Timers Q&A Screenside Chat, check out this recorded session with CWD staff and lead volunteers.
If you have additional questions, you can reach out to us at conference@childrenwithdiabetes.com.
We cannot wait to see you in just a few short weeks! It's gonna be wild!
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FFL Parents, we’ve linked all of the Youth Program “Letters to Parents” below, including a letter about our updated Sports Central. Please review the links below as they pertain to your family, and let our team know if you have any questions!
Kiddie Kove (ages 0 - 5)
Elementary Program (ages 6 - 8)
Tween Program (ages 9 - 12)
Teen Program (ages 13 - 17)
Sports Central
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DocuDiabetes is back! Create a video that shows something about living with type 1 diabetes in 60 seconds or less and we will show the five winning videos during the conference banquet. Video submissions are due June 27th at 11:59pm ET. To see some examples from previous years, visit our YouTube page.
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Join us for the inaugural FFL Golf Outing on Saturday, July 9th at Disney’s Oak Trail Golf Course during FFL. Open to attendees, staff, and sponsors of all ages and abilities, the golf outing will help raise funds for the scholarship fund. For more info and to register, visit: cwd.is/Golf2022. Limited spots remaining.
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You can now download the mobile app from the Apple App Store and Google Play to plan your Friends for Life experience. The app contains conference information, including the schedule, faculty and staff bios, and social activities.
Apple link: https://cwd.is/Apple
Google Play link: https://cwd.is/GooglePlay
Your credentials for logging into the app are:
username: <<Email Address>>
password (registration confirmation number): <<Reference Number>>
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Diabetes care device companies will be back this year offering trials. These opportunities are by appointment only. Appointments will fill up quickly, so please sign up as soon as you can. Saline pump trials require a prescription for "Saline Pump Trial" from your diabetes care team. Be sure to bring that with you.
View our complete event schedule at cwd.is/orlandschedule.
Omnipod
Wednesday and Thursday in Toluca A
Sign up online at cwd.is/PodTrial
Tandem
Wednesday through Friday in Toluca B
Sign up online at cwd.is/tslimTrial
Medtronic InPen
Wednesday through Friday in Sonora B
Sign up online at cwd.is/InPenDemo
TrialNet Screening
A TrialNet team will be on-site performing screenings beginning on Tuesday and continuing through Friday in Coronado Q. Family members who do not have type 1 diabetes can be screened for risk factors and can participate in important clinical trials. For more information about this important study, visit the Type 1 Diabetes TrialNet website.
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Focus Groups
Focus Groups will be held on Wednesday. There are several focus groups that require pre-registration. Session descriptions are below. Be sure to click the "pre-register here" link to request to attend the session.
Dexcom Focus Group 1
Dexcom would like to learn from you and your child about the ways you track meals and activities. Do you log meals? Events? Times of exercise? How does this help you manage diabetes? What is most important about tracking meals and activities today and in the future? Join us for an engaging discussion!
11:00 am on Wednesday, July 6 in Fiesta 2.
Pre-register here.
Dexcom Focus Group 2
Dexcom would like to learn from you and your child about the ways you track meals and activities. Do you log meals? Events? Times of exercise? How does this help you manage diabetes? What is most important about tracking meals and activities today and in the future? Join us for an engaging discussion!
1:30 pm on Wednesday, July 6 in Fiesta 2.
Pre-register here.
Omnipod Focus Group 1
Help us better understand your unique needs as parents and/or caregivers of children living with diabetes and what you – and they – are looking for to simplify life with diabetes. Participants do not need to be current Omnipod® users.
11:00 am on Wednesday, July 6 in Coronado M.
Pre-register here.
Omnipod Focus Group 2
Help us better understand your unique needs as parents and/or caregivers of children living with diabetes and what you – and they – are looking for to simplify life with diabetes. Participants do not need to be current Omnipod® users.
1:30 pm on Wednesday, July 6 in Coronado M.
Pre-register here.
Tandem: Devices & Desires
Tandem is seeking newly diagnosed (within the last 12 months) type 1 teenagers (13-18 y.o.) to participate in a focus group to discuss a next-generation insulin delivery device concept. We will ask about your preferences and desires for an insulin delivery system as well as seek feedback on a development concept.
9:00 am on Wednesday, July 6 in Coronado CD.
Pre-register here.
Tandem: Devices & Wearability
Tandem is seeking type 1 children, ages 6-12 on insulin pumps, (with one guardian) to participate in a focus group to discuss wearability for insulin delivery devices as well as mobile applications. We will seek your feedback on how when and how mobile applications are utilized for diabetes management as well as seek feedback on wearability accessory concepts.
1:30 pm on Wednesday, July 6 in Coronado CD.
Pre-register here.
Real Life Prep: College, Work, and Independence with Diabetes
This session is for parents, caregivers, teenagers, 20-somethings and anyone else interested in the exciting transition from home to independence with diabetes. We will inform attendees about available resources, share how to get involved with a campus-based CDN Chapter and provide an open discussion around topics related to college, work, living away from home, and relationships.
1:30 pm on Wednesday, July 6 in Yucatan.
Pre-register here.
Provention Bio Focus Group: T1D TRIVIA: IT’S GAME ON!
What’s more fun than a little friendly competition? Now’s your chance to put your T1D knowledge to the test, learn something new, and win a prize. T1D trivia topics will include: Debunking common T1D myths and misconceptions, T1D stats and facts, and information around early screening for T1D.
3:30 pm on Wednesday, July 6 in Coronado EF.
Pre-register here.
Diabeloop Focus Group: Putting People First
The Diabeloop team is looking for people aged 18 and older with diabetes that are using a CGM and MDI to participate in a focus group. We want to better understand your needs and what is most important to you in future insulin delivery systems. Please complete this registration form if you are interested in participating. We will select qualified applicants on a first-come first-served basis. Participants will be compensated with a $50 Amazon gift card upon full completion of the meeting.
9:00 am on Wednesday, July 6 in Coronado EF.
Pre-register here.
embecta: New and Emerging Technologies
In this focus group, we would like to explore what pain points exist with advanced technologies (e.g. insulin pumps) as well as discuss new and emerging technologies and some of the potential advantages and disadvantages. Read more.
9:00 am on Wednesday, July 6 in Fiesta 2.
Pre-register here.
embecta: Optimizing the Injection Experience
In this focus group, we will discuss challenges and opportunities and ideas around improving the insulin injection process for those using injection devices. Read more.
3:30 pm on Wednesday, July 6 in Coronado CD.
Pre-register here.
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Are you an HCP? Join Cher Pastore, MS, RD, CDCES, BC-ADM, from the clinical education team at Dexcom as she presents the latest updates from Dexcom. Come hear about Dexcom’s Connected Systems, ways to get the most from the G6, new clinical evidence and more! The lunch will be held on Thursday, July 7 from 12:00 to 1:30 pm in Lantana 1-3 in the ground floor of the Tower building. Register here.
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